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AMERICANALMANAC (Jonah Adams) - Six-year-old with rare skin condition says school bullies call her 'grandma'

Six-year-old Aizza Akhil has a rare skin disorder that makes her look elderly, and classmates call her “grandma”, her family needs money for more surgeries. Aizza Akhil is only six, but a rare genetic disorder has left her skin loose, sagging, and wrinkled far beyond her years. At school in Wayanad, India, older students have […] The post Six-year-old with rare skin condition says school bullies call her 'grandma' appeared first on American Almanac .

Six-year-old Aizza Akhil has a rare skin disorder that makes her look elderly, and classmates call her “grandma”, her family needs money for more surgeries. Aizza Akhil is only six, but a rare genetic disorder has left her skin loose, sagging, and wrinkled far beyond her years. At school in Wayanad, India, older students have mocked her for it, and she has told her parents the taunts cut deep. The Sun reported that the girl has Cutis Laxa, an incurable condition that affects roughly one in four million people and is believed to afflict fewer than 500 people worldwide. Doctors say it can worsen with age and may threaten internal organs and immunity. Her family is already stretched thin trying to keep up with treatment. Speaking at home,…Open

How did the school in Wayanad respond to the bullying of Aizza Akhil by her classmates?
After Aizza was mocked and called "grandma" by older students in July, her uncle, Arjun George, intervened by meeting with her teachers. This led to a school assembly where students were educated about what Cutis Laxa is and why her skin looks the way it does. Following this intervention, students reportedly became "softer" towards her.
Q&A ID 409bb999-1af0-4d26-9c5f-171292a3b8d1
How does the financial situation of Aizza Akhil's family impact their ability to provide necessary medical treatment?
Aizza's father, Akhil KC, works as a security guard earning approximately 20,000 rupees (around £160) a month. However, her monthly treatment costs can reach up to 20,000 rupees, which exceeds his monthly income. The family recently paid almost £800 for plastic surgery and faces significant financial strain as doctors warn that more operations will be necessary as she grows.
Q&A ID 6d3c1d64-60cf-4f00-acab-1d785e092216
What specific medical complications and daily care requirements are associated with Aizza Akhil's condition, Cutis Laxa?
Cutis Laxa can worsen with age and may threaten internal organs and the immune system. Specific risks include pulmonary emphysema. Aizza requires daily medication for breathing, regular medical visits, and constant moisturizing for her dry, itchy skin. Additionally, she requires plastic surgeries to address issues such as skin drooping that covers her eye.
Q&A ID bed35216-6038-4443-b22f-64f1323d3397
What is the name of the rare genetic skin disorder that affects six-year-old Aizza Akhil in Wayanad, India?
Aizza Akhil suffers from a rare genetic disorder called Cutis Laxa. This incurable condition affects approximately one in four million people and is believed to afflict fewer than 500 people worldwide. The disorder causes the skin to appear loose, sagging, and wrinkled, making the child look much older than her six years of age.
Q&A ID 2e16e408-c8c0-4d33-a177-9c572a7515c9
Keywordsindiawayanadkeralacutis-laxabullyingmedical-newshealthrare-diseasegenetic-disordersurgeryhealthcarehuman-interestnewsculturewholesomeparentingchildhoodmedical-researchworking-classmedical-bills