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4 items before 1150829 (Keyword: "rare-diseases" (~4 currently found))

NYTIMES (Gina Kolata) - ‘Too Rare to Care’? A New Center for Rare Diseases Hopes to Change That

A new nonprofit wants to streamline gene therapy for diseases often avoided by pharmaceutical companies — making treatment more like a routine procedure than a bespoke drug.

AMERICANTHINKER - The FDA Imitates Backwards Europe on Drug Regulations

FDA Europe shows what can happen when countries let bureaucratic procedures take precedence over the well-being of people suffering from rare diseases.

NYTIMES (Christina Jewett) - F.D.A. Faces Upset Over Denials of New Drugs

Agency officials promise fast reviews of new treatments while vowing they will not be a “rubber stamp” for the industry. But patients with rare diseases view recent decisions as signs that the doors are closing on their options.

YOUTUBE (NewsNation) - Special Edition: Why Can’t We Cure Cancer? A National Conversation | Full CUOMO Show 2/27

America has battled the war on cancer for more than half a century. Despite major advances, each new year brings millions of new cancer diagnoses and deaths. Chris Cuomo holds an intimate conversation with some of the U.S. Government’s top doctors, an FDA insider and those looking to push the research forward on why the disease hasn’t been cured and what steps could be taken to advance the search for a cure. The panel includes: The Director of the National Institutes of Health, Dr. Jay Bhattachacharya, the National Cancer Institute Director Dr. Anthony Letai, the CEO of The Parker Institute For Cancer Immunotherapy, Dr. Karen E. Knudsen, Former Associate Commissioner of the Food and Drug Administration Peter Pitts and Dr. Patrick…